The Blog

Dawson is an amazing little boy! He brings such joy to our lives. He has the most perfect little smile. Although he is non-verbal, he communicates with his eyes and hands to make us feel so loved. Whether he is hanging out in his bed or his wheelch…

By Margaret, Ally's Mom As we approach World Down Syndrome Day on March 21st, we were asked to share a little about our daughter Alison (Ally). There is so much to write about, but I think our focus should be about how such a small little girl has m…

By Kim, Jeremiah's mom My son Jeremiah has grown not only physically but emotionally as well with physical therapy. When Jeremiah was born, we already knew he would have a harder time with simple things such as eating, talking, and walking. Even cra…

Saylor is a 20-month-old little girl with a rare mitochondrial disease and Fanconi Syndrome. Because of these conditions, Saylor depends on a central line with TPN for nutrition and, until recently, she required frequent hospitalizations. During the…

By Maira, Erik’s mom Although my son, Erik, has always been a sweet boy, when he turned three his behavior began to change. I noticed a delay in his speech when he turned three years old, which was a bit odd to us since my older daughter had been ve…

When Doug and Tina’s fourth son, Anthony, was born with muscular dystrophy, they faced new challenges as parents. “We didn’t know what to do,” Tina recalls. “We didn’t know what kind of life he could have. We had no idea how to parent a child who de…