Published June 16, 2019
When Doug and Tina’s fourth son, Anthony, was born with muscular dystrophy, they faced new challenges as parents. “We didn’t know what to do,” Tina recalls. “We didn’t know what kind of life he could have. We had no idea how to parent a child who de…
Published May 31, 2019
When Margo was diagnosed with profound hearing loss shortly after birth, her parents began researching options for early language development for children who have hearing loss. They read a lot of books, researched articles online, and spoke to youn…
Published May 24, 2019
Presley started therapy services with Aveanna in December of 2017. He was a bright, happy, and intelligent three-year-old. But Presley also had a severe fluency disorder and was beginning to show anxiety about the way he spoke.
When Aveanna Speech-L…
Published May 17, 2019
By Rachel, Ella's mom
Ella has Nemaline Rod Myopathy and an immunoglobulin deficiency. Her skeletal muscles are profoundly weak, which makes endurance difficult and breathing on her own for long periods exhausting. Ella was trached in 2016 after get…
Published May 12, 2019
By Shannon, Penny's mom
When I was pregnant, I daydreamed about what it would be like to hold my baby. I imagined taking her for a walk in the park, but all of that changed when Penny was born with Pierre Robin Syndrome.
I realized pretty quickly th…
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