Life with Trisomy 21: Catalena's Story
Published March 20, 2020
By Priscilla, Cat's Mom When people tell you that you don't know love until you're a parent, it's true. When Catalena first looked up at me with her little baby eyes, it was like time stopped. The world was still. I knew she was going to make my lif…
Life with Trisomy 18: Dawson's Story
Published March 13, 2020
Dawson is an amazing little boy! He brings such joy to our lives. He has the most perfect little smile. Although he is non-verbal, he communicates with his eyes and hands to make us feel so loved. Whether he is hanging out in his bed or his wheelch…
Life with Trisomy 9 Mosaic: Carolyn's Story
Published March 9, 2020
Soon after Carolyn was born, she received a diagnosis of Trisomy 9 Mosaic. This rare chromosomal condition is characterized by an extra ninth chromosome in some of the body’s cells. While Carolyn’s parents quickly learned the technical definition of…
Life with Trisomy 21: Ally's Story
Published March 6, 2020
By Margaret, Ally's Mom As we approach World Down Syndrome Day on March 21st, we were asked to share a little about our daughter Alison (Ally). There is so much to write about, but I think our focus should be about how such a small little girl has m…
Living Life to the Fullest with a Feeding Tube
Published Feb. 14, 2020
“I have spinal muscular atrophy type two,” Cory shares. “Because of my condition, I’ve had to learn to adapt to every type of normal situation, including eating.” Spinal muscular atrophy is a genetic condition that causes progressive muscle weakness…
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